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Mt_Rider

Events of this summer....aieee!

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Mt_Rider   

1....So July 2, I fell and damaged ligaments in my foot.  EXHAUSTING get around our little house ....and feed so ducks aren't eaten by predators after dark.  That's coming along but not yet healed.

 

2........Then DH had the Incident with the Drama Horse pulling out all the wood fence posts and dragging some of them over top of DH...laying on ground.  What we didn't realize at the time was....he sustained a large dark bruise on the back of one thigh. 

 

3............NOW we wonder if that contributed to the Pulmonary Embolism which was the NEXT MAJOR EVENT a couple days later July 25.   He's going to TRY working at gas station tomorrow and Sunday..... [pray for him, please] He didn't sleep right last night so he slept for a while today.....and I unplugged the phone.  So I didn't get the call from my dad...... :o

 

 

 

4.................TODAY..... my mother had an episode of not being able to breathe in...for several minutes.  Then it slowly cleared and she could breathe.  They went to ER and the doctors called it "heart failure":runcirclsmiley2:WHAT DOES THAT REALLY MEAN???  Do they mean she has "congestive heart failure"?????????  Neither of them remember hearing 'congestive'.  They have a bunch of paperwork...which we'll read when we go in on Sunday [when my brother/niece will arrive for their visit].  She felt poorly that morning until after the Big Episode and then felt fine.  :0327:  Just wiped-out tired.  Only in ER for 2-3 hrs.  Took a nap at home and then they went to get new 'scripts....diuretic and potassium pills.  [always prescribed together]   And chicken sandwiches from McD's. 

 

While they were in ER, they talked about DH's episode and nurse said they get SO MANY pulmonary embolism cases in our high altitude county!  .....hmm, didn't know that....   And of course they told my mom that she should get out of this altitude.....

 

 

 

Bottom line, now all four of us have medically documented reason(s) to get out of the altitude..... 

 

Pray for our health issues.......and especially for my brother's visit next week.  Perhaps some decisions can be made.....  :unsure: Not sure WHAT it will take to move my dad tho....he just wears out and stops the plans...  :faint3: They didn't UNpack any of their boxes so they're half-way still ready to go....somewhere.  

 

I'm feeling a VERY overwhelmed physically/cognitively.  Yet emotionally/spiritually.....I'm ok.  In fact.....doesn't it seem like we are being DRIVEN out of this altitude?  Which means ...at long last....perhaps NOW is the time for God's Next Plan.  THAT would be very exciting! 

 

MtRider  ....except the part about DH and my mom having scary medical things going on....  :pray:  :pray:  :pray:  

 

 

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Jeepers   

Mrs. :pray:

Mr. :pray:

Mom :pray:

Dad :pray:

 

I'm so sorry you guys are going through all of this! But I agree; it does sound like a wake-up call. All very serious issues. I mentioned in another forum/thread wondering about the high altitude and your DH's blood clot. Are your parents still thinking about moving east near your brother? That would be nice if you all could be together to help each other out. Those decisions are so hard to make. And I know you have such problems with the heat. I get it. I really do. Wish there was something beside hugs and prayers I could do to help.   :hug3:

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Mt_Rider   
9 hours ago, Jeepers said:

I mentioned in another forum/thread wondering about the high altitude and your DH's blood clot.

 

 

I remember you said that....but I'm still wondering exactly WHAT mechanism is being affected.  In general, high altitude makes all systems work harder.  So techicallly we're more 'fit' that y'all low-landers.  lol   That's why the Olympic contenders train up here in CO.  However.....when we get older... obtaining O2 is harder.  Our thick blood is harder for the heart to pump and circulate. 

 

MtRider :pray:

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I'm so sorry your whole family is going through this!  I so agree, perhaps a new direction is in the forecast.

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Mt_Rider   

This afternoon DH goes to the pharmacy to refill the script for his blood thinner.  $400 for 30 days.  :blink:   I knew it was going to be bad.... Got the first 21 days free..... 

 

And he runs into the husband of my Women's Bible study friend.  They live just up the ridge from us and I've often gotten rides to church functions with them.  They were one of 2 that brought us a meal after DH's event.  Grma of the kids I hosted at my 'petting zoo' a couple evenings ago. 

 

T was getting a 'script filled for L....who was out in their truck.  She'd fallen on their driveway and injured the thigh muscle of one leg.  They had all sorts of hooha.  She couldn't get up and sent a GrD up to get GrandpaT.  He drove the truck down the driveway and tried to maneuver it close to L. :gaah: ..... he got truck stuck in the mud we have with this persistent rain.  He called to some delivery guys across the road and they got him unstuck.  But they had to call for the rescue/medical crew from the fire station to carefully get L up ....and into their truck.     

 

Yep, today.... yet another person ended up in our little ER .  Nothing broken but they are older than us and I'll bet she's going to find the crutches quite difficult.  We just don't have the strength we used to have.  And she's always had back trouble tho after surgery, it's been a lot better.

 

So ....if you can add my friend L to your prayers.....

 

DH is coming home from first day back at work.  Sounded ok but didn't get to ask him much.  He had a new guy....to train on the closing procedures.  So DH could just 'supervise' tonite and tomorrow nite.  :thumbs:

 

MtRider ......  :twister3: 

 

 

 

 

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dogmom4   

Praying that things get easier and you can figure out what your next move will be. Did you say hubby is now working at a gas station? Did he shut his business down?

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Mt_Rider   

Yeah....he slid quietly into the sunset a couple yrs ago.  <_< With career-caused arthritis getting so bad he had to drop to adjusting part-time....there is no way financially that an office can profit.  TPTB keep piling on waaaaaay too many fees, dues, continuing ed. classes, taxes, restrictions, overhead for XY&Z, extra paperwork....extra paperwork.....worthless paperwork....    :0327:   He even considered dropping the overhead of an office and doing what he does' mobile'.  Particularly just with the long-time patients.  But you still have way to many fees, etc JUST to keep the sinkin' license.   Aaaaugh!  This is not a time period to be small business in the medical/health field.  CO is especially problematic in the health field.....unfortunately. 

 

So he works p.t. at a gas station....connected to a major grocery store.  We do much better now than with the office,  tho I have a hard time thinking that should be even remotely possible.  <_< Partly because we get percentage off grocery products and extra off on sales items.  Is that revoltingly crazy or what?   DH has become an informed shopper and can get 40-50% off grocery bills.  :shopping:  :woohoo:

 

The best part is that DH is no longer   :banghead:    .....trying to do what can no longer be done.  :(  While that's sad, the pressure is off of him and he's finding out how easy it is to go to job....punch out and go home.  :hapydancsmil:   Now our DD2/SIL have their store and know the woes of small business owners.  They now understand what we were facing all those years.  SIL has skills in other areas and does side line things at good $ for extra.  This evens out the UP and DOWN of small business.  We also had that while I worked.  It was when I came out of the workforce with MS that we didn't have that kind of buffer. 

 

Life is simple now.....until major things like this summer happen. :o

 

MtRider ....God provides, definitely.  But sometimes it's impossible to guess what HE's doing next!  :amen:

Edited by Mt_Rider
it posted 'fore I was finished
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Cat   

Continuing prayers for all of your concerns, my friend.   Along with much love.  :hug3:

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Jeepers   
On ‎8‎/‎12‎/‎2017 at 0:32 AM, Mt_Rider said:

This afternoon DH goes to the pharmacy to refill the script for his blood thinner.  $400 for 30 days.  :blink:   I knew it was going to be bad.... Got the first 21 days free..... 

 

I just got a itemized statement from my insurance company. It was for when I went to the doctor to talk about getting my meds refilled. I did that and got a prescription for a mammogram, the second pneumonia shot and a blood draw. Keep in mind this is a general practice office and not a specialist. Also, I see their nurse practitioner and not the actual doctor.

 

The office call was        $274.00

The shot was                  $56.00

Vaccine solution was    $240.00

Blood draw was              $11.00

 

That was  $581.00.  I didn't even see a doctor and except for the blood draw, no one even touched me. This is another reason why I waited to go on Medicare before I went to the "doctor." Between Medicare and my supplemental plan I don't think I have to pay any of it. I don't think. Crimony, I hope not.

 

$274.00 for a routine general practitioner's office visit! And $56.00 for an aide to give a shot. We are in deep deep trouble folks.

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Mt_Rider   

Indeed we are in deep deep trouble, Jeepers.....

 

Toooo worn out to even relate what happened ....and what almost happened at DH's doctor visit today.  Liked the doc but he almost missed the most important thing.  DH is now on oxygen....and they gave him enough for FOUR HOURS.  :wacko:

 

He's at 98% oxygen saturation when he's immobile...sitting/laying.  When he moves.  when he walks.  when he climbs our stairs.  when he carries something.....it dives down to a dangerous 84%....and his heart rate accelerates!  I INSISTED that they take that little finger O2 SAT device and walk DH down the hall and back.  Yeppers.....he had that little device SCREEEECHING within one and a half hall lengths.  Now THAT'S what I'm talking about!  Poor aid walking with him couldn't get him back to the room and sitting fast enough.  She ran for the O2 tank.    I heard it and smiled.  Told ya!

 

But I'm thinking "People!  You know he's been without O2 for THREE WEEKS NOW....  20 days since he left the ER.  I TOLD you he's getting.....well, dumb and uncoordinated.  I TOLD you I'm doing EVERYTHING so he can save oxygen!  A sitting O2 saturation test means nothing when he has to climb 15 stairs to get into our house!

 

:runcirclsmiley2::banghead::runcirclsmiley2:

 

Which was WHY I sat in the appointment with him.  His brain is on.....and then his brain turns off.... 

 

Thank You, God....for the eventual revelation of the truth this day.  Help us to get more O2 tanks.....way up here in the mountains.  4 hrs in that tank....Hmph!

 

We liked the doc....as well as we can like MD trained docs who say things like "Better living thru chemistry".  Honestly, he said that......after asking me WHY would DH want to get off diabetes meds.  I'd asked if he could control it by diet and get off the meds.  My mouth dropped open on that one.  WHY WOULD YOU NOT want to get off the meds? 

 

But he caught something on me and said I'm to get in for my own appointment.  ...and I knew that but hadn't had it checked....and will see him next week.  I like that he caught what the PA did not when I saw her for my appointment in May.  I meant to ask then and I forgot to ask her.

 

The poor gal who 'walked' DH was new, I think.  The screeching machine...drop in O2 .....increase in heart rate [hers and DH!  LOL ].....  what a day she had!  But she was sure trying. 

 

OK...now that I did describe part of this exhausting day....

 

MtRider  :offtobed:

 

 

Edited by Mt_Rider

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Sarah   

Tanks?  OK, a different part of the country, and altitude, and humidity, so maybe...  Here tanks are for emergency and chair use.  The 'medicare' o2 scavenger systems are what are issued now.  Downside for us is that they are AC powered. 

 

There is, now, 'fanny' and 'belt' battery powered units but much too costly (artificially inflated prices), and are made to where you can not charge tanks from them.  And they require a bit of humidity to function.

 

We work with compressed air and filtration a lot, with the book preservation.  The add-on in-line-with-hose o2 scavenger units are much cheaper, less than $200 (?) for charging scuba gear.  These we use to charge the emergency/chair tanks.  You might want to do some google on diving equipment.  Here, the downside with them is the moisture, which you simply can not keep out of the tanks, despite several water filters/excluders/'spit valves'.

 

Sarah.

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Mt_Rider   

Yeah, thanks Sarah.  Due to CONTINUED problem getting the paperwork to the O2 company.....today he's taking his O2 from a borrowed "O2 concentrater" machine.  That's probably the same machine you're talking about...different term.  Mebbe not.  :shrug: Our good friends "next door"  [N/W... whom I've mentioned many time] both have sleep apnea but N also has to have just O2 sometimes.   So she purchased this refurbished one for a bit over $300.  When she heard of our continued problem into this morning...W brought it over.  N doesn't need it during the day - usually - and she's not home.  Big heavy unit on wheels. 

 

Anyway....all of them require a prescription.....and THAT'S what we can't even get passed on for the O2 tank company.  We needed this 21 days ago.  We need this yesterday.  Later....we're already planning to see about alternatives to tanks....tho tanks are the only thing he could have outside the house.  Cuz ...as you say...the small O2 concentraters are horrendously overly inflated in price.  :0327:  Have been watching them for my parents.  Dive shop......not sure we even have those in CO.....  :lol:   But dive tanks don't have concentrated O2 do they?  Just regular air mix?  DH certified for SCUBA in Maui...but not me.

 

Doc had requested that DH take his waking BP.....before he drinks coffee or even wakes up.  This morning it was 200/146.  :runcirclsmiley2:Surely not!  He took it again and got exact same results.  DH is a chiro and has taken thousands of BP's over the decades.  It was a true reading.  That data got a nurse on the line with me.  She was astonished to find that we had taken action ourselves and got him on O2 for today.  Welllll,  ya THINK? 

 

I only slept between 5-10 am.  I am sooooooo wired and also soooooooo exhausted!  Told the clinic nurse that "you have a secondary problem.  I AM ALSO YOUR PATIENT....have been you were a little clinic across the highway.  I'm doing everything so he can remain IMMOBILE!  :imoksmiley:   I have MS and I'm old!  Sheeeesh!  I'm begging you....get those O2 tanks up here cuz N has to have this machine back by tonite.  We bought you some time with our own initiative....don't waste it!" 

 

If I hadn't said we had O2 now....with BP like that.....they would have sent him to ER.  Yeah....like a half hour trip is going to do either one of us any good.  DH is taking a nap in bed with the blessed machine.  I'm WIRED. 

 

Please pray they get this thing moving!  Or he may have to sleep in the ER tonite.  GREAT MEDICAL SYSTEM WE HAVE. 

 

MtRider  ...praying to the Great Physician.

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Jeepers   

Oh my...that blood pressure reading scared the stuffin's out of me. That sounds like stroke range. So glad you guys are getting on top of it! :hug3:

 

Did your mom find out what the doctor meant about her heart problem?

 

:pray:   :pray:   :pray:

 

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Mt_Rider   

Thank you all....you're the greatest!  :grouphug:   Upholding me during an AWFUL AWFUL DAY....with a good ending! 

 

:amen:  Yesssssssss.....he's got his own O2 concentrater!  Sarah called it right!!! :thumbs:  Not every company has the concentrators but this company does.  :woohoo:  Especially good for heavy use up in this thin air......and where would we put dozens of tanks....and how many trips would the city company make to deliver more and more tanks...  I'm surprised and VERY pleased with the concentrater.....instead of tanks! 

 

Better yet.....this one has a heavy-lunk-thing that sits on the top of beeping/hissing R2D2.  That extra device fills smaller pressurized bottles.   So if he can maintain on the puff-puff setting instead of steady flow of O2, each of the small bottles will last about 6 hours.  We're filling one now to try it. 

 

Theoretically, he's supposed to go to work tomorrow.  I'd rather he call off and go on Sat when we've all stabilized a bit.  He's a man.....will he listen?  :shrug:

 

I made at least 10 calls today to the O2 place and our clinic.  O2 place NEEDED the script.  Clinic wasn't producing it.  Finally did.  The tech guy had been waaaaay over hill and dale and had actually called to ask if morning delivery would do.  I told him...."It is absolutely imperative that he gets on O2 tonite......etc"  He quickly agreed that our delivery wasn't the one he'd postpone.  Very friendly and knowledgeable.   Hauled the regular concentrater...and the bottle filler device up our 15 steps.  Explained it all.  :cheer:   We 'bout killed ourselves [DH had to adjust my back quickly after a shove trying to get the thing into the house clicked my back DEFINITELY OUT of place.....great to have a chiro handy!  ] :wub:

 

But beyond the waiting and phone calls.....DH's lower legs/ankles/feet SWELLED UP suddenly.  He was puffier than normal at the docs yesterday.  But he had the same dimension of his large calf muscle all the way down to his feet.  :runcirclsmiley2:  Elephant legs.  Sooooo very glad you all were praying this day!  After the high BP [which went "down" to 160--150...scary but above 200 is definitely red zone!]  DH ....being chiro...knew how to stimulate his lymphatic system to begin dealing with whatever this swelling was coming from.  He's on so many meds right now and diuretic is one of them.  Then he lay on my hospital bed and we cranked the foot way up.  He spent time with that...on the borrowed O2.  Then later he took a little walk on flat road with Koa ...no O2 during that but had to get lymphatics moving to diminish edema.  Then got back on bed with O2 and foot elevation.  By tonite, there is quite a bit of swelling down.  Still some to go.  But MY blood pressure was about to top out when all this was going on.  Aiiieeeee.....

 

This...on top of the situation with my mom......yes, it's congestive heart disease.....  :(  

 

At this point, I'm about ready to drop....now that I've run ALL my energy flat out!  :faint3:

 

DH's legs are continuing to drop the swelling.... :amen:

 

MtRider  .....a very rough day but.....seems like we're past the major hurdles....  :offtobed:

 

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Jeepers   

My cousin used one of the concentrator air tanks too. It was big and bulky but she had a long hose that was tethered to it so she could move all around in the house. Plus it was on wheels. She needed it all the time though.

 

I'm always surprised when doctors don't want to prescribe certain types of machinery. It isn't like its coming out of their personal bank account and it's not like it's some opioid to go get high on. As long as there isn't a long waiting list for it, that could compromise a really sick person...what's the big deal. Especially if the person wants to pay for it himself.

 

I'm sorry about your mother. Hopefully she can stay healthy and have no more episodes too.  :pray:

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Sarah   

I am so glad you are getting it all under control and got the 'script'.  Actually, I am a bit shocked at that, a script/prescription required?  Once again I bless our clinic/medical system over the 'medicare state' and all the crazy regs (with 'force of law'). 

 

I do not know the language, apparently, obviously.  'Concentrator' vs 'scavenger'.  What I am calling a 'scavenger' strips the O2 and H out.  We do not want either in our 'preservation' air.  But then we refuse to waste the 'waste' O2.  As for the H, that stuff is just too dangerous to even consider bottling.

 

The 'R2D2' 'concentrator' unit sounds like a good deal, most I have seen, do NOT have the option to fill tanks. 

 

The spiked BP.  The swelling.  Cyclic O2 needs.  Well, I am not a doctor, but I would be looking those meds over again.  I just learned that one of our volunteers, who has been out a while (and I miss her!) is having similar 'swell' issues, tracked back to her amlodipine bresylate (BP med).   Something about a combination with glucophage (she is a type II) and our odd genetics.  All of our people have swelling, and BP, issues with the injection you get in hospital to prevent 'ward cough'.

 

Hang in there. 

 

Sarah

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Mt_Rider   

Whew!  My sleep-deprived, O2-deprived DH got the best nite's sleep in 23 days.....and so did I.  :amen:

 

Neither of us has been at our brightest cognitively.  We're just all worn out.  But.....this too shall pass and with the O2 to stabilize DH, I think we've turned THIS corner. 

 

We'll see how he does at work today....yes, of course he's going.  I wish his shift wasn't so late.  All injury/illnesses seem to get worse in late evening......a signal to go to bed and rest, I think. 

 

Actually Sarah, I think the terms 'O2 scavenger'...or 'O2 harvester' is kind of more descriptive than 'concentrator' [which I couldn't get spelled correctly in my brain fog...ack!].  My dad keeps calling the devices 'O2 makers' ...which isn't technically correct, but also get's the idea across.  Other than being electric-dependent, I love the whole concept.  It's more economical for customer and the company.  

 

Off to do morning feeding of our critters.  Need to get the posts back into the ground and switch horses to the other side.  That's not something I can do and DH can't either, yet.  But....God provides. 

 

MtRider  :amen:    .....all these oxygen addicts  :lol:

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Vic303   

Wow, MTR, I missed this thread over the last few days!  I am relieved that DH is doing better, having that new machine around will be good.  I hope you are able to get some rest too.  You both need rest and time to heal/recover.  I'll keep you both in prayers, esp for God to provide some help around the property to fix fences!

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Mt_Rider   

Thank you all!   Yes, Vic...exactly what we need.

 

I mostly rested yesterday except feeding AM/PM .....switching around feed bags to fill 5 gal bucket we draw from daily; setting up this and that.  That extra is what DH usually keeps up with and now can't.  He had a pretty good day/nite at work.  Did not look/sound FLATTENED like last week.  Bottles of O2 ran thru quickly but he had enough.  Everyone knows that he is to SIT and STAND and not much else.  Coworkers are backing him up.  One is working a 12 hr shift today to cover for DH's evening that he's not doing today.  Tomorrow he'll work again.  Setting up to work twice a week.....days not close together.  That will work.   As time goes on and lung is healing, he'll be more able. 

 

I had a bad nite.  Thot I took the sleep aid and discovered at 4:30AM that I had not.  :motz_6:  Right at the time when one MUST not fail to do X, Y, and Z.....it also the time when brain is more likely to fail to REMEMBER it correctly.  Hmph. 

 

Took pill and slept from 5-10am.   Somehow my ability to compensate for a late sleeping hour by sleeping later ...even to noon....has now been disrupted.  :shrug:  Sleep is elusive with MS....all my life.  But DH got great sleep.  THAT'S important. 

 

Another of our church's members went to be with Jesus last nite.  She was senior and had been ill a while.  This one, unlike last week's, was expected.  But it's still tough on our small membership.  Pray regarding J and her family and our church.  :pray:

 

The one who passed on these prayer requests to me asked if DH and I need anything during this time for us.  And I woke with my "furnace was blowing dust during the nite" cough/congestion.  Sounds horrible till I get it cleared.  Thing is at this point.....not sure what anyone else can do.  Hmmm...unless someone has equipment to grade our driveway which is a mess of ravines.  AND THE FENCE.....plum forgot about that when P asked me.  Sheeesh.  Otherwise it's a lot of little things like animal care that need special knowledge.  It's not any big thing....a million little things - daily.  Like being pecked to death by ducks.  :shrug:

 

 .....still gotta REST today.  But DH does too so I hope he's not thinking he's going to save me now......just cuz he has O2 doesn't heal his lung immediately.   Just cuz he now feels he's rejoined the human race....he can't push either.  Pray he makes good choices.

 

MtRider  :grouphug:

 

 

Edited by Mt_Rider
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